Here I am again, keyboarding
instead of letting my fingers
draw the chosen alphabet
with a pen, upon paper
Here I am again
thinking of how sleepy and tired I feel
responding with thoughts of why,
again
I don't like the word "wisdom"
I don't like unsolicited advice
I don't like when others assume
that they know what I'm feeling,
what I'm thinking
Projection
autonomic response
of the human psyche
Awareness
a deliberate decision
to notice
Perspective
a deliberate decision
to view from various directions
Are not those deliberate decisions
a type of "wisdom"
Perhaps I'm okay with that wisdom
but not okay with pseudo-wisdom
where another assumes they know,
when they don't
Stuff that comes off my keyboard
Tuesday, December 25, 2018
Saturday, December 22, 2018
Wednesday, November 14, 2018
11/10/18
I've got to get out of this funk
Thursday was so very, very dark
I cannot pretend it did not happen
And move along to the next thing
Nor do I need to dwell on it
But I do need to be cognizant of it
I cannot fight my illness
I cannot run from it
So neither fight nor flight can apply
Yet, that is sometimes the response
So one fights with one's self
Or runs from one's self
But there is no escape
Reality is
I have a serious, rare, long term disease
For which, supposedly, there is
No cure
So, the symptoms and all their derivatives
Must be managed
That is the best I can do
For now
My first and foremost responsibility is
Selfcare
Which isn't selfish
It is a lonesome task
Variety of pains
Shooting, aches, tenderness
Spasms
Muscle weakness
Movement in slow motion
Vertigo
Nausea
Headaches
Migraines
Overwhelming fatigue
Utter exhaustion
Scrambled eggs for brains
Anxiety
Depression
Suicidal ideation
Insomnia
Lowered immunity
Bone loss
Heartburn
Bloating
I am aware of and watchful for these
On a daily basis
I manage them as they arise
Not necessarily all at one time
But sometimes it is
All at once
The severity fluctuates
On any given day
So Carol, go easy on yourself
You really do a damn, good job
Thursday was so very, very dark
I cannot pretend it did not happen
And move along to the next thing
Nor do I need to dwell on it
But I do need to be cognizant of it
I cannot fight my illness
I cannot run from it
So neither fight nor flight can apply
Yet, that is sometimes the response
So one fights with one's self
Or runs from one's self
But there is no escape
Reality is
I have a serious, rare, long term disease
For which, supposedly, there is
No cure
So, the symptoms and all their derivatives
Must be managed
That is the best I can do
For now
My first and foremost responsibility is
Selfcare
Which isn't selfish
It is a lonesome task
Variety of pains
Shooting, aches, tenderness
Spasms
Muscle weakness
Movement in slow motion
Vertigo
Nausea
Headaches
Migraines
Overwhelming fatigue
Utter exhaustion
Scrambled eggs for brains
Anxiety
Depression
Suicidal ideation
Insomnia
Lowered immunity
Bone loss
Heartburn
Bloating
I am aware of and watchful for these
On a daily basis
I manage them as they arise
Not necessarily all at one time
But sometimes it is
All at once
The severity fluctuates
On any given day
So Carol, go easy on yourself
You really do a damn, good job
Sunday, October 28, 2018
Us and them: Maybe I prefer boredom...
Why is the world so cruel?
Or is ugly more apt?
Violent? Mean? Hateful?
Hard-hearted? Greedy?
Suspicious? Paranoid?
Scapegoat-seeking?
Or is ugly more apt?
Violent? Mean? Hateful?
Hard-hearted? Greedy?
Suspicious? Paranoid?
Scapegoat-seeking?
Ah, yes.
"Negativity bias."
The human instinct to feel and see
the worst
so we are not overtaken by it,
so we can protect against it
for the survival of our progeny.
At some point, or points,
we all play the hypocrite.
The "interpreter from underneath."
Yet, as I mentally note the voluminous
shared aspects of our common humanity,
in the back of my mind lurks the question,
What about the sociopath?
That category of humanity who, supposedly,cannot feel empathy?
The rules do not apply to them.
Yet, they are human.
Are they not also subject to
our common emotions,
our shared humanity?
Some good must dwell somewhere
within them?
How can I describe it?
Understand it?
This lurking question,
this not-quite-human reality,
working at cross-purposes with my
desire to believe
there is good in all humanity.
Is it difficult because it is so foreign?
Or is it difficult because it is too intimate?
Understand it?
This lurking question,
this not-quite-human reality,
working at cross-purposes with my
desire to believe
there is good in all humanity.
Is it difficult because it is so foreign?
Or is it difficult because it is too intimate?
Questions to which there are no clear answers.
Am I unable to see the sociopath as fully human?
What are they, if not fully human?
My only conclusion is that,
either in the womb or later,
an empathy-void developed
for which there is no cure.
If I cannot have empathy toward that,
am I fully human?
What are they, if not fully human?
My only conclusion is that,
either in the womb or later,
an empathy-void developed
for which there is no cure.
If I cannot have empathy toward that,
am I fully human?
That's what life is.
A whole lotta damn questions.
And not as many answers.
Life would be pretty boring otherwise...
Maybe I prefer boredom...
*~*
"Some humans ain't human..." by John Prine
Monday, September 3, 2018
Validity
Why is your opinion more valid?
Because of confidence?
Because of belief?
I used to say,
"I don't just believe;
I know,"
when it came to the "right-dividing"
of the Scripture,
which spanned all life
and time and circumstance.
Whose opinion is more valid?
Mine? Yours?
His? Hers?
Because of confidence?
Because of belief?
I used to say,
"I don't just believe;
I know,"
when it came to the "right-dividing"
of the Scripture,
which spanned all life
and time and circumstance.
The Lion King
Three friends
lying on their backs,
staring up at the night sky
filled with tiny, twinkling lights.
One friend, Pumbaa, asks,
"Timon, ever wonder
what those sparkly dots are
up there?"
Timon answers,
"Pumbaa, I don't wonder.
I know."
Pumbaa replies,
"Oh.
What are they?"
Timon answers,
"They're fireflies.
Fireflies that got stuck up in that
big bluish, black thing."
Pumbaa replies,
"Oh. Gee.
I always thought they were
balls of gas
burning billions of miles away."
"Simba, what do you think?"
Simba is hesitant,
timid to reply.
But with some cajoling
he gets it out.
"Somebody once told me that
the great kings of the past
are up there,
watching over us."
Timon and Pumbaa ponder
for a moment.
And then burst into
laughter
at the thought of
dead royals watching over them.
Unknown to Pumbaa and Timon,
Simba is a royal.
A runaway, hiding in exile.
His father had been a great king
who was murdered when Simba,
now a young adult,
was a cub.
Three friends
lying on their backs,
staring up at the night sky
filled with tiny, twinkling lights.
One friend, Pumbaa, asks,
"Timon, ever wonder
what those sparkly dots are
up there?"
Timon answers,
"Pumbaa, I don't wonder.
I know."
Pumbaa replies,
"Oh.
What are they?"
Timon answers,
"They're fireflies.
Fireflies that got stuck up in that
big bluish, black thing."
Pumbaa replies,
"Oh. Gee.
I always thought they were
balls of gas
burning billions of miles away."
"Simba, what do you think?"
Simba is hesitant,
timid to reply.
But with some cajoling
he gets it out.
"Somebody once told me that
the great kings of the past
are up there,
watching over us."
Timon and Pumbaa ponder
for a moment.
And then burst into
laughter
at the thought of
dead royals watching over them.
Unknown to Pumbaa and Timon,
Simba is a royal.
A runaway, hiding in exile.
His father had been a great king
who was murdered when Simba,
now a young adult,
was a cub.
Whose opinion is more valid?
Mine? Yours?
His? Hers?
Sunday, August 19, 2018
Puddle
I don't like feeling hate
And I will not allow another
That power over me
To cause me to feel such hatred
At least, for a prolonged amount
Of time
Yet, for this moment, I feel
Hatred
A rottenness in my belly
Forty-five
I steel against his lies
And the division he spews
His life motto is
If you bellow a lie often enough
People will believe it
He squawks and shrills
Refusing accountability
Exposing his own guilt
I wonder if he feels
At all
I wonder if his constant chaos is an effort
To feel
I doubt the man has an inkling of humility
In his soul
This week he tweeted,
"...I have already MADE America Great Again..."
I thought of Proverbs, Chapter 16
"Pride goeth before destruction"
I thought of Lucifer's "I wills"
In Isaiah, Chapter 14
Lucifer fell
Yet he retained great power
Trump just needs to fall
And cease
I pray Trump's pride is his demise
But instead of retaining any power
May he melt away
Without recognition
And I will not allow another
That power over me
To cause me to feel such hatred
At least, for a prolonged amount
Of time
Yet, for this moment, I feel
Hatred
A rottenness in my belly
Forty-five
I steel against his lies
And the division he spews
His life motto is
If you bellow a lie often enough
People will believe it
He squawks and shrills
Refusing accountability
Exposing his own guilt
I wonder if he feels
At all
I wonder if his constant chaos is an effort
To feel
I doubt the man has an inkling of humility
In his soul
This week he tweeted,
"...I have already MADE America Great Again..."
I thought of Proverbs, Chapter 16
"Pride goeth before destruction"
I thought of Lucifer's "I wills"
In Isaiah, Chapter 14
Lucifer fell
Yet he retained great power
Trump just needs to fall
And cease
I pray Trump's pride is his demise
But instead of retaining any power
May he melt away
Without recognition
Friday, July 20, 2018
More than
Been pretty depressed this week
More than my typical amount
Yes, my ongoing health struggles are a big part of the cause
It's just so everyday
And discouraging
And can get quite lonely
Yet, I have so much compared to most of the world
I am not bedridden
Just limited in
Mobility and sociality and cognitivity
My main support is Hubby
And Olivia, my bike
Even though she's inanimate
I'm thankful I can still pet sit
That too is more limited than it once was
I feel love from my animal friends
I hope the next life is
Run by animals
Who are
More humane than humans
More than my typical amount
Yes, my ongoing health struggles are a big part of the cause
It's just so everyday
And discouraging
And can get quite lonely
Yet, I have so much compared to most of the world
I am not bedridden
Just limited in
Mobility and sociality and cognitivity
My main support is Hubby
And Olivia, my bike
Even though she's inanimate
I'm thankful I can still pet sit
That too is more limited than it once was
I feel love from my animal friends
I hope the next life is
Run by animals
Who are
More humane than humans
Sunday, July 1, 2018
Reflecting in the wee morning hours...
6/30/2016, 4:20 AM
I feel alive when I'm
Solo
along a trail
I don't feel alone
What a privilege it is
to feel
What a privilege and pleasure
to feel
Now, I'm tired
I feel alive when I'm
in the mountains
in the woods
in the woods
Solo
along a trail
I don't feel alone
I feel connection
I feel awe
I feel reverence
I feel awe
I feel reverence
What a privilege it is
to feel
What a privilege and pleasure
to feel
gratitude
charity
passion
wonderment
charity
passion
wonderment
Now, I'm tired
Sunday, June 17, 2018
It Again
As of Friday, this past, I hit the uphill climb
It's tough.
And even if I hadn't hit that hill, I still couldn't
So...
And, I am absent.
Those parts of me cannot function, like they once did.
It is another loss.
Wonder?
If I'd compile my thoughts, would any of them be deep enough
Or would I just sound like a whiner?
Remember when you used to journal on paper, with a pen, in books,
And then your life changed.
Remember?
That could happen again, you know.
until my neck injections,
eleven days away.
It's tough.
The pain.
The cognitive dysfunction.
The fatigue.
Battling the shame and guilt and loss that comes
It's hard.The cognitive dysfunction.
The fatigue.
Battling the shame and guilt and loss that comes
with the "it."
And even if I hadn't hit that hill, I still couldn't
coordinate a gathering,
I can't even commit to going to one, much less hosting one. like for Father's Day or a birthday or such.
So...
that's just the way it is.
I feel like an absent mom and wife and friend
I feel like an absent mom and wife and friend
and maker of home.
An absent giver.And, I am absent.
Those parts of me cannot function, like they once did.
It is another loss.
Wonder?
If I'd compile my thoughts, would any of them be deep enough
to stimulate food for thought?
But if I make them public, I'll probably be so self conscious that I'll lose sleep.
Yet, if I would post them, maybe someone could relate?
Maybe not. Or would I just sound like a whiner?
Remember when you used to journal on paper, with a pen, in books,
in your first chronic illness life?
And you would wonder,Why? Why am I doing this? What does it matter that I write all
these thoughts in these books?
And then your life changed.
Remember?
That could happen again, you know.
Saturday, April 7, 2018
Earthen Vessels
I survived Yesterday.
But one day, when I die,
My to-do list includes making arrangements
If my body is turned to ash via cremation,
If I hadn't, there would be no Today.
Thus far, in my life, I've survived every Yesterday.
But one day, when I die,
there will be no Today.
Like every living creature on the planet,one day, I will die.
My to-do list includes making arrangements
for that future time of "no Today."
I'd like my body donated to science, if they'll take it and if it's not too complicated a task.
I'd like my gold crowns extracted from my teeth,before my body is committed to scalpels or flames.
Maybe the gold will be worth something, or can be put in an urn.
I don't know if science cremates body parts once those parts have run their teaching course.
If not, maybe I'll have some hair-locks instead of ashesstored with the gold crowns in the urn.
If my body is turned to ash via cremation,
I'd like some of it spread at Grayson Highlands,
and maybe some at Roan, and maybe some stored in an urn
which I'd select while I still have my faculties,and maybe have the urn stored in the grotto
at the Episcopal Church of the Frescoes in Glendale Springs, which is on the way to Grayson Highlands,
and maybe Hubby would do that too,our ash could share the same urn,
and we'd have our names engraved in a small, rectangular, golden plaque,and have the plaque attached on the outer wall of the grotto
along with the other plaquesengraved with others' names whose ashes also abide
in handpicked vessels in the grotto.~vessels in the grotto, 1/21/17~ |
~vessels in the grotto, 1/21/17~ |
Friday, April 6, 2018
Easy. Easy.
What do you feel right now, Carol?
Lack of confidence?
Like a slacker?
Pressure to do another person's "right" thing?
To heed another's instruction for what will "heal" you?
Stop.
Ask your own body...
What are you able to do today?
What will bring you grounding?
What will allow you to ride the river?
But are those soul questions?
Instead of body questions?
I'd say both.
I ask Body because it houses Soul.
The two are really one.
Soul is Self.
Self includes Body.
It's okay to not accomplish what I feel culture demands.
It's okay to only breathe today, if that's all I can do.
But I feel like more than just breathing today.
Yet I haven't popped my morning pills.
And it's almost noon.
I had to nap this morning.
It was needful.
"Easy. Easy."
That's what I say to my blind-dog friend.
When he is about to run into a wall.
He slows down and most often doesn't hit the wall.
I don't want to hit the wall either.
"Easy. Easy."
Monday, February 19, 2018
Drifting unedited
So much i want to say that never gets said.
It's like my brain is too tired to get the words to my tongue
or thru the pen.
Lots of ideas.
Lots of thoughts.
Self talk though...
criticizes me & then tries to pretend i'm confident.
Optimistic.
How can i accept this illness as a permanent state?
How can i express this struggle?
It's like my brain is too tired to get the words to my tongue
or thru the pen.
Lots of ideas.
Lots of thoughts.
Self talk though...
criticizes me & then tries to pretend i'm confident.
Optimistic.
How can i accept this illness as a permanent state?
How can i express this struggle?
Friday, February 16, 2018
Taxidermy
Heart of the lion
represents courage.
Who can defy his
might?
Yet a small bullet aimed
just right, arrests the pulse
stops the
flow.
Instantaneous or slow
life is drained,
no more
hope.
Stuffed trophy head
high on the wall,
marksman treads upon the
paws.
Heart of the child
represents hope.
Yet one fatal aim,
silence.
judith piper
february o3, 2oo8
represents courage.
Who can defy his
might?
Yet a small bullet aimed
just right, arrests the pulse
stops the
flow.
Instantaneous or slow
life is drained,
no more
hope.
Stuffed trophy head
high on the wall,
marksman treads upon the
paws.
Heart of the child
represents hope.
Yet one fatal aim,
silence.
judith piper
february o3, 2oo8
Sunday, February 4, 2018
Falling together in increments
Symptoms.
Symptoms.
Symptoms.
Doesn't "sym" mean same?
I wonder if "tom" means tome?
The same heavy script.
Over and over.
Again and again.
Some are heavy.
Some are a just a nuisance.
Some are side effects.
Headaches.
Nausea.
Migraines.
Bloating.
Weird tastes.
Tummy spasms.
Brittle, thinning hair.
Wig in the bathtub.
Last appointment, my massage therapist asked, "Did you cut your hair?"
Random purpura on my arms.
Red patches and dots from broken blood vessels.
Beneath my skin.
Eye hemorrhages.
Sometimes I don't know vessels have burst.
Until the person I'm with avoids looking at my eyes.
Tender palms.
Tender soles.
Pain, but only slight.
Back pain.
Leg pain.
Wrist pain.
But not enough for an oxy.
Weakness.
Shortness of breath.
Fatigue.
Brain mud.
Talking self through simple tasks.
Minutia matters.
I'm sure I've left something out.
Like the back spasms a couple months ago.
With burning pain that shot through my groin.
It's gone now.
And muscle atrophy from years of nerve damage.
Toothpick legs.
Shriveled biceps.
Depression.
Anxiety.
Isolation.
Continuous process of balancing.
Do I push now?
Do I rest now?
If I rest, will it be restful?
This too will pass.
There is always a brighter day.
Even my biceps are becoming less shriveled.
I was able to cut my finger nails yesterday.
Without assistance.
Hubby spotted me, just in case.
I have improved
In increments.
Increments matter.
*~*
"Sym" means together.
"Ptom" derives from piptein which means "to fall."
symptom (n.) 1540s, re-Latinized from sinthoma (late 14c.), from Medieval Latin sinthoma "symptom of a disease," altered from Late Latin symptoma, from Greek symptoma "a happening, accident, disease," from stem of sympiptein "to befall, happen; coincide, fall together," from assimilated form of syn- "together" (see syn-) + piptein "to fall," from PIE *pi-pt-, reduplicated form of root *pet- "to rush; to fly" (see petition (n.)).
Symptoms.
Symptoms.
Doesn't "sym" mean same?
I wonder if "tom" means tome?
The same heavy script.
Over and over.
Again and again.
Some are heavy.
Some are a just a nuisance.
Some are side effects.
Headaches.
Nausea.
Migraines.
Bloating.
Weird tastes.
Tummy spasms.
Brittle, thinning hair.
Wig in the bathtub.
Last appointment, my massage therapist asked, "Did you cut your hair?"
Random purpura on my arms.
Red patches and dots from broken blood vessels.
Beneath my skin.
Eye hemorrhages.
Sometimes I don't know vessels have burst.
Until the person I'm with avoids looking at my eyes.
Tender palms.
Tender soles.
Pain, but only slight.
Back pain.
Leg pain.
Wrist pain.
But not enough for an oxy.
Weakness.
Shortness of breath.
Fatigue.
Brain mud.
Talking self through simple tasks.
Minutia matters.
I'm sure I've left something out.
Like the back spasms a couple months ago.
With burning pain that shot through my groin.
It's gone now.
And muscle atrophy from years of nerve damage.
Toothpick legs.
Shriveled biceps.
Depression.
Anxiety.
Isolation.
Continuous process of balancing.
Do I push now?
Do I rest now?
If I rest, will it be restful?
This too will pass.
There is always a brighter day.
Even my biceps are becoming less shriveled.
I was able to cut my finger nails yesterday.
Without assistance.
Hubby spotted me, just in case.
I have improved
In increments.
Increments matter.
*~*
"Sym" means together.
"Ptom" derives from piptein which means "to fall."
symptom (n.) 1540s, re-Latinized from sinthoma (late 14c.), from Medieval Latin sinthoma "symptom of a disease," altered from Late Latin symptoma, from Greek symptoma "a happening, accident, disease," from stem of sympiptein "to befall, happen; coincide, fall together," from assimilated form of syn- "together" (see syn-) + piptein "to fall," from PIE *pi-pt-, reduplicated form of root *pet- "to rush; to fly" (see petition (n.)).
Monday, January 22, 2018
Ode to Email
T'was a middle-aged lady who lived in a house.
Her functions were many; she wasn't a souse.
She was secretary, cook, cab driver too,
activities planner, home maintenance guru.
Doctor, nurse, janitorial clerk,
counselor, teacher, overseer of work.
Just a few of the functions for which she stayed perk.
Then to add to her list? The computer pimple
Pop ups and adds wrinkles and dimples!
Upgrade! Upgrade! It makes your life simple!
But beware of viruses; you need that program too!
And identity theft; so your name is who?
Got too much spam? Pay more and it's through!
First there was junk mail to take up her time
and now more info to boggle the mind.
This middle-aged woman stepped back and breathed deep,
"It's time to make simple this communication heap."
She decided, yes, her email to keep
but now only checks it every two weeks.
So if her attention you immediately need
please call her by phone to get sooner heed.
moi
1999
Her functions were many; she wasn't a souse.
She was secretary, cook, cab driver too,
activities planner, home maintenance guru.
Doctor, nurse, janitorial clerk,
counselor, teacher, overseer of work.
Just a few of the functions for which she stayed perk.
Then to add to her list? The computer pimple
Pop ups and adds wrinkles and dimples!
Upgrade! Upgrade! It makes your life simple!
But beware of viruses; you need that program too!
And identity theft; so your name is who?
Got too much spam? Pay more and it's through!
First there was junk mail to take up her time
and now more info to boggle the mind.
This middle-aged woman stepped back and breathed deep,
"It's time to make simple this communication heap."
She decided, yes, her email to keep
but now only checks it every two weeks.
So if her attention you immediately need
please call her by phone to get sooner heed.
moi
1999
Monday, January 1, 2018
beauty, purpose
fruit falls
flesh rots
seeds bury
many die
others root
struggle through
the soil
push, crack
inhale, exhale
emerge upward
sun, air
reach downward
water, food
storms, wind
ice, fire
survival, strength
night, day
inch, inch
taller, wider
nourishment, life
buds, fruit
fruit falls
flesh rots
seeds bury
i too
am seed
12/19/2017
judithpiper
flesh rots
seeds bury
many die
others root
struggle through
the soil
push, crack
inhale, exhale
emerge upward
sun, air
reach downward
water, food
storms, wind
ice, fire
survival, strength
night, day
inch, inch
taller, wider
nourishment, life
buds, fruit
fruit falls
flesh rots
seeds bury
i too
am seed
12/19/2017
judithpiper
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